How we can help

Support Services

The majority of our services are offered by our volunteer outreach team who are trained to provide a professional service and have regular updates to ensure our clients receive the best possible outcome from any support we offer. More complex issues are dealt with by our team of professional staff based in our Edinburgh office.

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  • Someone to talk to
  • After diagnosis
  • Dealing with difficult change
  • Other times of stress
  • Help to complete application forms and navigate official systems
  • Practical support through the application process
  • Advocacy/representation at Disability Tribunals
  • DLA, PIP, ESA & other Welfare Benefits
  • Support to make strong housing applications
  • Representation at council and housing agency meetings
  • Advocacy to negotiate property suitable for your requirements
  • Advocacy and advice on employment issues
  • Information and guidance for employers/potential employers
  • Representation at employment related meetings
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  • Grants to purchase essential household items
  • Financial help with the cost of respite breaks and holidays
  • Help to fund other expensive items that help improve quality of life
  • An opportunity to share interests and social activities
  • Regular contact with someone who can offer support and you can share your concerns with
  • A person to help you develop life skills and build your self confidence
  • Regular contact with someone who can offer support and you can share your concerns with
  • A person to help you develop life skills and build your self confidence
  • Someone to support you through a transitional period
  • A therapeutic massage session can leave you feeling fresh, energised and relaxed as well as enhancing your sense of wellbeing
  • Provided by professionally trained massage therapists who donate their time on a voluntary basis
  • Free of charge and can be booked by simply asking a member of your CF team, ward staff or contacting us directly on 0131 445 5590
  • Transport to and from hospital and clinic appointments
If it hadn’t been for the dedication of your organisation there is no way we could have provided this support to the family.

Cystic Fibrosis Consultant

The Butterfly Trust have been such a help to my family and myself. They have and continue to help us through difficult situations.

Katie, Edinburgh

Please watch our awareness video