Adult Support

Our adult support is available to anyone over 18 living with or affected by Cystic Fibrosis and all of our services are free and confidential. Initially, your contact will be with our professional staff based in our Edinburgh office, but many of our services are also offered by our volunteer outreach team who are trained to provide a professional service and have regular updates to ensure our clients receive the best possible outcome from any support we offer.


Below is a list of the main types of support we offer, but we offer a wide-range of support and help so even if you can’t find what you need on this list, please get in touch. 

Woman receiving help to complete a benefits form from a Butterfly Trust representative.We have over 20 years of experience with helping people provide benefits agencies with the unique and relevant information concerning their CF to ensure they receive a fair and appropriate award. We provide:


  • Help to complete application forms and navigate official systems;
  • Practical support through the application process, from beginning to end;
  • Advocacy/representation at Disability Tribunals.

A set of house keys being passed from one hand to another, portraying the support we give to adults and families around housing.

Because it is important for people living with CF to have housing that is appropriate and provides a suitable environment for home treatment, we provide:


  • Support to make strong housing applications;
  • Representation at council and housing agency meetings;
  • Advocacy to negotiate property suitable for your requirements.

Whether it’s university, college, or skills development, we can support you to achieve your goals by:


  • Helping secure grant funding if required;
  • Advocating for adjustments or support at your place of education or training;
  • Providing access to necessary equipment or supplies.

We support people with CF to achieve their employment aspirations by providing:


  • Advocacy and advice on employment issues;
  • Information and guidance for employers/potential employers;
  • Representation at employment related meetings.

A woman holding and reading a bill and looking worried.Cystic Fibrosis can be an expensive condition, so we can help access:


  • Grants to purchase essential household items;
  • Financial help with the cost of respite breaks and holidays;
  • Help to fund other expensive items that help improve quality of life.

Volunteer doing exercises with a client in the gym as part of one-to-one support.

We can provide ongoing One-to-One support to adults to receive mentoring, help improve self-confidence, build life skills, explore aspirations, engage education and employment opportunities, and access appropriate benefits and housing. Our professional staff and trained volunteers understand the effects of Cystic Fibrosis and offer regular contact, a listening ear, and practical support.


If you think you might benefit from one-to-one support, please get in touch.

Young woman securing her seat belt in a car.


Our volunteer drivers provide transport to and from hospital clinic appointments.

Living with Cystic Fibrosis can create difficult and complex emotions and stresses. We provide emotional support and counselling:


  • after diagnosis;
  • to help process difficult change;
  • at other times of stress.

Carer having a phone conversation with our Carers support team.Cystic Fibrosis can affect the whole family, so we provide support for carers as well as those with the condition. If you are a carer who needs support, please visit our Carer Support page and don’t hesitate to contact us.

Contact us for Support

We promise to keep your details safe and never sell or swap them with anyone. Our privacy policy at the bottom of this page explains how we keep this promise. If you don't want to hear from us, or change your mind about how we contact you, email or call 0131 445 5590.
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