Carer support

Carers are also affected by Cystic Fibrosis, and we offer support services to those who are supporting others. All of our services are free and confidential and your first contact will be with our professional staff based in our Edinburgh office. Many of our services are also offered by our volunteer outreach team who are trained to provide a professional service and have regular updates to ensure our clients receive the best possible outcome from any support we offer.

Below is a list of the main types of support we offer for carers, but we provide a wide-range of support and help so even if you can’t find what you need on this list, please get in touch. If you are looking for support for someone you care for, then please visit our Children’s support or Adult support pages.

We have over 20 years of experience helping carers provide access benefits appropriate for them and their families. We provide:


  • Help to complete application forms and navigate official systems; 
  • Practical support through the application process, from beginning to end;
  • Advocacy/representation at Disability Tribunals.

A set of house keys being passed from one hand to another, signifying support to provide appropriate housing for people living with Cystic Fibrosis and their carers.


Because it is important it is for people living with CF to have housing that is appropriate and provides a suitable environment for carers to provide home treatment, we provide:


  • Support to make strong housing applications specific to your needs;
  • Representation at council and housing agency meetings;
  • Advocacy to negotiate property suitable for your requirements.

A woman holding and reading a bill and looking worried.Cystic Fibrosis can be an expensive condition, so we can help access:


  • Grants to purchase essential household items;
  • Financial help with the cost of respite breaks and holidays;
  • Help to fund other expensive items that help improve quality of life.

Living with Cystic Fibrosis can create difficult and complex emotions and stresses. We provide emotional support and counselling:


  • after diagnosis;
  • to help process difficult change;
  • at other times of stress.

Employers often do not understand all of the complexities and pressures of caring for someone with Cystic Fibrosis. We can provide support and advocacy so you can stay in work while maintaining your caring responsibilities.


Contact us

We promise to keep your details safe and never sell or swap them with anyone. Our privacy policy at the bottom of this page explains how we keep this promise. If you don't want to hear from us, or change your mind about how we contact you, email or call 0131 445 5590.
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